Welcome to the SPNS Social Media Initiative

Thank you for visiting the Social Media ETAC website, home to information about the Evaluation and Technical Assistance Center (ETAC) for the Special Projects of National Significance (SPNS) Use of Social Media to Improve Engagement, Retention, and Health Outcomes along the HIV Care Continuum Initiative. 

You are invited to read more about the project and the work that we are doing.  

Using the HIV continuum as our guide to optimal care, the ETAC will work to ensure that patients enrolled in the Social Media demonstrations projects are to the fullest extent possible engaged in high quality HIV care. While data are not available on youth retained in care, prescribed ART, and virally suppressed, Zanoni and Mayer (2014) have estimated that only 25% are linked to care, 11% retained in care, and 6% virally suppressed. These figures suggest the severity of the lack of engagement of HIV-infected youth and young adults with HIV medical care and the urgent need for innovative interventions to identify, engage, and retain these populations in care. 

Additional Resources for Intervention Manuals & Monographs:

Webinar on 508 Compliance (pdf) / (mp4)

Videos on Word Accessibility 


This Special Projects of National Significance (SPNS) Initiative, Use of Social Media to Improve Engagement, Retention, and Health Outcomes along the HIV Care Continuum Initiative [2015-2019], is a multi-site demonstration and evaluation of innovative social media methods designed to identify, link, and retain HIV-positive underserved, underinsured, hard-to-reach youth and young adults (ages 13-34) in HIV primary care and supportive services. These methods include system approaches utilizing a variety of social media, internet and mobile-based technologies to improve engagement and retention in care, and viral suppression. Demonstration projects are expected to implement these models; evaluate their effectiveness; and to disseminate findings, best practices, and lessons learned. These social media interventions will focus on youth and young adults living with HIV who are aware of their HIV status, but have never been engaged in care; are aware, but have refused referral to care; have dropped out of care; are infected with HIV, but are unaware of their HIV status; or have not achieved viral load suppression. Demonstration sites are also required to work collaboratively with an Evaluation and Technical Assistance Center (ETAC) throughout the four year project period to collect and report evaluation data and disseminate successful methods to the larger public health community.

Final All-Recipients Meeting Information:

5600 Fishers Lane, Rockville, MD 20857

June 25-26, 2019

The following reflects the presentations as they occurred on the agenda


1.) Data Timeline Updates for Final Months

2.) Manual and Monograph Activites in Final Months

3.) Publications and Dissemination Plans Post SMI


4.) HRSA Staff Opening Remarks (mp4)

5.) Preliminary Findings Qual Data (pdf) / (mp4)

Site Presentations: Panel 1

6.) Howard Brown Health Center (pdf) / (mp4)

7.) Washington University St. Louis (pdf) / (mp4)

Site Presentations: Panel 2

8.) San Francisco DPH (pdf) / (mp4)

9.) Wake Forest University (pdf) / (mp4)

10.) Coastal Bend Wellness Foundation (pdf) / (mp4)

Site Presentations: Panel 3

11.) Philadelphia FIGHT/CHOP (pdf) / (mp4)

12.) Pennsylvania State University-Hershey (pdf) / (mp4)

13.) MetroHealth System (pdf) / (mp4)

Site Presentations: Panel 4

14.) Friends Research Institute, Inc. (pdf) / (mp4)

15.) New York State Institute (pdf) / (mp4)


16.) Preliminary Findings Quant Data (pdf) / (mp4)

17.) HRSA & ETAC Closing Remarks (m4a)